Rare Disease Day(in leap years; usually celebrated in common years on February 28)
Annual awareness day held on February 29 in leap years (February 28 in common years) to advocate for people living with rare diseases.
Rare Disease Day was established in 2008 by EURORDIS-Rare Diseases Europe to raise global awareness of rare conditions.
Set on the rarest calendar date, February 29, the observance highlights the challenges faced by those affected, including delayed diagnoses and limited treatment options.
Each year focuses on a theme to mobilize patient organizations, researchers, healthcare providers, and policymakers.
Events worldwide range from conferences and workshops to public awareness campaigns and social media initiatives.
The goal is to improve equity in healthcare access, research funding, and public understanding.
Through collective action, Rare Disease Day strives to foster solidarity and drive progress for the millions impacted by rare diseases.
Rare Disease Day